amelia · Christmas · giveaways

"God Bless Our Christmas": A Giveaway for the Day Your Child Gets a Diagnosis

My sweet friend Hannah who ate chocolate chips out of the bag with me on the last night of the Blue Ridge Mountain Christian Writer’s Conference and won the award for best blog is an actual real book-on-the-shelf writer.

She wrote this sweet story and its accompaniments: God Bless Our Easter and God Bless You and Good Night. Beautiful board books for familes, not just children. She used vivid words and a soothing rhythm to remind us in God Bless Our Christmas who is the reason we have all these blessings to enjoy.

“The Christmas carols that we sing
Are full of joy and love.
I have such cheer this time of year.
It comes from God above.”
–except from God Bless Our Christmas

I cuddled up on the couch last week to read this with Amelia, my four year old, and her best friend Ellie. They took a break from the ponies in the dollhouse to tuck into each of my sides and hear the words. Amelia liked the penguins best. Ellie liked the polar bears. I liked the simplicity that so often gets overlooked in our busy holiday.

But most of all I liked having a normal moment with my baby girl. Normalcy has become a thing of the recent past for us in the last few days. I suppose that’s common–because when you get news that’s hard and uncertain, a new normal develops. 
When I wrote these words to those who bear sadness this Christmas, I didn’t know how true they would become for me–
Let this season of love put you back together again.

In the midst of uncertainty and fear, we are welcoming the arms of love that have wrapped tight around our family during these last few days.

Last week, I took my four year old for a stat CT scan and prayed only for an answer to why she had stopped using her right hand and begun stuttering and being clumsy. The test revealed that Amelia has an arteriovenous malformation (AVM).  It’s a scary moment to realize your mother’s intuition is right. That, yes, there is something very wrong and it might get worse before it gets better.

But here’s the truth of our diagnosis. She will get better. This is a treatable condition that we still don’t know about completely and there’s still more testing to be done. But she will get better. Even if that better means a surgery or a drug regiment or who knows what. They tell us we’re the best case diagnosis for something being wrong in her brain.

And I’m scared out of my mind that it will be nothing or something or anything. I’m scared I won’t be strong enough for her, for my husband, for my other girls. I’m scared I’ll run out of energy to give.

But I don’t have to have enough of me to go around. I have a great big God who formed her and knows her and formed me and knows me. He knows what we need and what we can handle. He’s given us a network of friends and family who are already begging for jobs to do, already bringing meals, already replacing my favorite lost pair of earrings.

God Bless Our Christmas indeed.

So today I’d like to spread a little Christmas love. I’m giving away one copy of God Bless Our Christmas. Winner will be chosen at random from comments left on the blog. You can comment on Facebook too, if you like, but I won’t pool entries from there. One location is all I can handle.

Tell me whose Christmas would you like to bless?

Christmas · faith · Friday Five · holidays · linkups

Dear Ones Who Bear Sad Tidings This Year (Five Minute Friday)

It can be hard this time of year to find the joy in the twinkly lights and the broken nativity and the limp garland when all you want to do is hide away in a corner from the well-wishers and the do-gooders and the hope-bringers.

It can be hard to be facing a holiday ringed with family dinners and friendly hospitality and gift exchanging when there’s one less seat at the table, one less card in the mail, one less gift under the tree.

When I was ten years old my mama walked this journey. My daddy walks it now. This stumble through the season of glad tidings when the tidings dealt you this year were dark and doomed. The tidings of grief under the shadow of fear.

I don’t remember how Mama got through that Christmas. Her mother died three days before December 25 and we buried her two days after. My most vivid memories are that she bought me a black velvet dress and my uncle reamed all the grandkids for daring to ask if we would open the presents Grandmommy had already wrapped and placed beneath her tree. There would have been five of us kids at that time. Five of us to get through breakfasts and toys and tantrums and the joy of Christmas that would forever be tainted with shock.

I remember how we got through last year when the cancer was doing its death march across my grandfather’s gut and the dementia was already eating away his memory. We just didn’t talk about it. We visited and the last time I saw him speak and smile and know me was Christmas Eve. This year I want to talk and celebrate and remember that he loved the mountains and coffee and another plaid shirt wrapped alongside a good book.

I don’t know how you do it. I don’t know how you walk through a season of grief during a season of happiness, but I do know this. You’re walking through a season of love.

Let yourself be wrapped and swaddled and cared for like that baby in a manger. Let that be the only hope you hold because it’s just too much to try and care about shopping deals or holiday feasts or gingerbread houses.

Let this be a season of nothing but love and let love put you back together again.

In that glorious coincidence way God works, I wrote this as part of the Five Minute Friday crew. I haven’t participated in months, but saw the prompt on twitter and had just five minutes this afternoon to word thoughts that had been tossing around for a few days. Then I click over to Kate’s place to link up and her words today? They’re on grief. So much so that she wrote an ebook about it and you can get it for free until midnight tonight.

Christmas makes the pain acute. My prayers are with you if you and yours are walking this journey right now.